Reduce the mortality rate of people living with sickle cell anaemia

The project, carried out by Fundació Montblanc in collaboration with the Congolese NGO CECFOR, aims to reduce the mortality rate of people living with sickle cell anaemia (drepanocitosis) in Haut-Katanga (Democratic Republic of the Congo) thanks to improving the quality of diagnosis and access to health care providers, preventing their social stigmatization.

Most of the children who are born with SS anaemia (one of the most serious) in the Democratic Republic of the Congo die before their fifth birthday, approximately some 50 minors. Patients face serious growth problems and other secondary effects due to lack of care, since proper care is more expensive than the average household income.

There are also adult patients living with the disease and its secondary effects such as heart disease, necrosis of the hip or leg ulcers, among other things.

The project aims to improve the state of health of the affected population with sickle cell anaemia through early detection and treatment of the disease, easy access of patients to pain treatment, specific immunisation and fighting social exclusion.

The project's main aim is to improve the state of health of the population of Haut-Katanga and reduced the mortality rate of people living with SS anaemia in this region through improving diagnosis and allowing them to access quality health care providers, thus preventing social stigma.

To achieve these outcomes, a set of activities is proposed:
  1. Diagnosis and follow-up of children under five years of age, pregnant women and adults in associated centres.
  2. Obtaining medicines, mosquito nets and blood transfusions if the patients require it.
  3. Broadcasting campaign about the disease: Preparation and distribution of leaflets and radio and TV programs aimed at the general population.
  4. Raising awareness among mothers attending prenatal and preschool consultations.
Once the actions have been implemented it is expected that the project will ensure that particularly vulnerable populations can access early drepanocitosis examinations and children under five years of age and pregnant women receive treatment. Finally, it is expected that those affected will benefit from specific quality health care which does not distinguish between the sexes.

The direct beneficiaries of the project are 1,200 people residing in the area of Haut-Katanga, of the Democratic Republic of the Congo.